According to a Pharmvestnik report, Evrysdi (INN Risdiplam) and Spinraza (INN Nusinersen) will be purchased for the treatment of wards of the Circle of Kindness Foundation with spinal muscular atrophy (SMA).
The Medical Support Center announced auctions for the supply of these drugs. The auction results will be announced on February 9.
– Risdiplam, powder for oral solution preparation (0.75 mg/ml), 2 g. Initial contract price: 61,287,244.40 rubles.
– Nusinersen, solution for intrathecal administration, 2.4 mg/ml. Initial contract price: 76,309,558.20 rubles.
According to earlier reports, for the first time, a treatment for neurofibromatosis will be purchased for the wards of the Circle of Kindness Foundation
The Circle of Kindness Foundation for the Support of Children with Orphan Diseases will be able to purchase newly registered medicines in Russia before they are put into civil circulation. The corresponding resolution was signed by Mikhail Mishustin, the Chairman of the Government of the Russian Federation.