The state Circle of Kindness Foundation has begun forming a reserve of unregistered medicines in Russia to ensure uninterrupted treatment for children with orphan diseases, based on requests from regions and federal centers. The first drug procured is belumosudil, used to prevent chronic graft-versus-host disease. This batch will be sent to the R. M. Gorbacheva Research Institute and the N. N. Blokhin National Medical Research Center.
The Circle of Kindness Foundation was established in 2021 at the President of Russia’s initiative. Earlier, during the conference “Social Partnership in the interests of children with serious illnesses” in the Public Chamber of the Russian Federation, Alexander Tkachenko, the chairman of the Board of the Foundation, said that the Circle of Kindness was able to provide medicines to almost 5,000 children with severe and orphan diseases.
The fund can form a reserve for an indefinite number of children based on regional or federal medical center requests, coordinated with the chief freelance specialist of the Russian Ministry of Health.
