The Government of the Russian Federation has proposed to transfer to the Circle of Kindness Foundation the authority to provide medicines for children with diseases included in the 14 Cost-Intensive Nosologies list. This is reported by Vademecum with reference to the amendments to Law No. 323-FZ “On Fundamental Healthcare Principles in the Russian Federation”, submitted to the State Duma.
Drugs under the 14 Cost-Intensive Nosologies state program are now provided to adults and children with hemophilia, cystic fibrosis, pituitary dwarfism, Gaucher disease, multiple sclerosis, hemolytic-uremic syndrome, juvenile arthritis with systemic onset, mucopolysaccharidosis of types I, II and VI, aplastic anemia, hereditary deficiency of blood clotting factors II, VII, and X (Stuart Prauer disease), as well as patients with oncohematological diseases and those after organs or tissues transplantation.
“The bill proposes to transfer the under 18 category from the state program to the drug support provided by the Circle of Kindness. It is assumed that the amendments will come into force on January 1, 2023,” the newspaper writes.
The Ministry of Health previously proposed to allow the Circle of Kindness Foundation to help patients over the age of 18.