The Circle of Good Fund will provide medicines for children with three more orphan diseases


The Good Circle fund following the results of a meeting of advisory council was included on March 3 in the list three the autoinflammatory diseases of a disease: family Mediterranean fever; the kriopirin-associated periodic syndrome; the periodic syndrome associated with a tumor necrosis factor receptor is said in the statement on the website of fund.

At a meeting at which reports were made by the chief non-staff children’s specialist rheumatologist of the Ministry of Health of the Russian Federation Ekaterina Alekseeva and the head of the Center of examination and quality control of medical care of the Ministry of Health of the Russian Federation Vitaly Omelyanovsky medicines for treatment of these diseases were considered. As a result experts chose the medicine of the first Kanakinumab line suitable for treatment of all three diagnoses, and sent this decision for the further approval in the board of trustees of fund. Consideration of the list of categories of children on the accepted diseases will take place at the next meeting of advisory council.

Also, on the diagnosis “spinal muscular atrophy” (SMA) which entered earlier the list of fund the advisory council approved the new applications including 422 children from 28 regions of the country. At the previous meetings of advisory council applications more than 480 children from 48 regions were approved. Lists of children from SMA who will receive the help from fund continue to be replenished.